96% of patients said POTS prevents them from socializing as much as they'd like, almost half of patients go out with friends less than once a month, and we explore the reasons why.
450 POTS patients rated 28 different non-drug therapies, including 18 dietary approaches, massage, physical therapy, counseling, essential oils, IV fluids, compression stockings, abdominal binders and more. We list ratings for which therapies "helped lots!" or "helped a little," along with what "made my POTS worse."
We look at ratings of what helped patients who listed autoimmune disorders, MCAD, and EDS as the cause of their POTS.
Yes, we are going there. 422 POTS patients share their experiences with constipation, diarrhea and "toilet terrors."
We look at patients' reports about whether POTS hurts different kinds of relationships.
We look at 422 POTS patients' ratings of how often they experienced various symptoms in the past month.
We look at patients' ratings about how much it helps to elevate the head of their beds, as recommended by some POTS specialists.
We report the average age of POTS patients at first POTS symptoms, first time consulting a doctor about it, and getting an official diagnosis. We also report different types of onset, and how many doctors were seen before one recognized POTS.
We look at patients' ratings of how well counseling helped with their POTS.
We look at how many POTS patients have tried acupuncture and whether they thought it helped.
We look at how many POTS patients have tried physical therapy and how well they thought it helped manage their POTS.
We look at how many POTS patients have tried essential oils and ratings about whether they helped.
We report the impact of POTS on different aspects of life, such as financial, social, physical, mental capabilities, fitness, sleep and more.
We look at patients' estimates of how much it costs to live with POTS, including out-of-pocket expenses for medications, treatments, doctor visits, lifestyle accommodations, lost wages, and other POTS-related needs.
POTS patients rated various daily activities according to how challenging they are because of POTS, and we noticed a trend that may be keeping POTSies at home.
We look at the breakdown of gender, age, and nationality of the 459 respondents to our first POTS Patient-Powered Survey.
446 POTS patients reported on whether they know the cause of their POTS, and if so, what it is. We learned some very unique ways to get POTS.
We look at 13- to 22-year-old patients' ratings of how (and why) POTS has affected their social lives and relationships. We also list some great resources for finding support, community and expert help.
We look at 430 patients' ratings about whether abdominal binders and compression stockings helped or made their POTS worse.
We look at how many POTS patients have tried massage and whether they thought it helped.
We tally the symptoms that POTS patients wrote in when asked if they had "other symptoms," besides the most common.
We continue our look at iron deficiency anemia among POTS patients, find that it's apparently "a POTS thing", in terms of prevalence and complexity, and find out the kidneys might even be involved. Where's Dr. House when you need him?
We look at POTS patients' ratings of 18 different diets and feel encouraged by the results!
50% of 423 POTS patients reported they'd had iron deficiency anemia. We look into the numbers to see if that's a lot.
We look at 424 patients' perceptions of how heat and cold affect their POTS symptoms.
We look at 417 POTS patients' answers about work, POTS-friendly jobs, and applying for disability benefits.
Did you have to see many doctors before one recognized that you had POTS? We show the stats...and feel bad for those who had to see 40+!
We look at the different activities that help us feel better when POTS gets us down.
Researchers at Vanderbilt found autoantibodies targeting adrenergic receptors in all 14 POTS patients tested and in 0 of 10 control subjects. The autoantibodies appear to interfere with vasoconstriction and could cause tachycardia.
53 Danish patients with suspected post-vaccination POTS and/or dysautonomia had "a high degree of consistency in the symptoms," especially headache, dysautonomia symptoms, excessive fatigue, cognitive dysfunction, disordered sleep, GI problems and widespread pain of a neuropathic character.
Patients at Baylor Medical Center reported on 34 symptoms associated with POTS.