POTS PatientsCount.org Newsletter #3

Dear Fellow POTSies,

Here it is (drumroll please):

The great big "What helped POTS" findings!

We're happy to report that we have analyzed the data and produced 4 big "What Works" charts, showing patient ratings of dozens of alternative therapies, dietary approaches and lifestyle accommodations. Many of them got good ratings for helping POTS.

Since no therapy is without its risks, we also included a graph showing "What made POTS worse." (Be sure to consult your doctor before trying anything new.)

Click here for the full report.

If you have already checked out the first "What helped POTS" chart, you might want to see our 3 new charts for specific groups, divided by underlying factors, such as Ehlers-Danlos, mast cell activation and autoimmune disorders.

Those findings are available here.

We are currently investigating whether we have enough data from patients in other groups, such as those who are certain their POTS was at least partially caused/triggered by pregnancy, surgery, mitochondrial disorder, Lyme Disease or injury/trauma. We'll keep you posted.

Finally, if you haven't already done so, please consider taking the Big POTS Survey, administered by Vanderbilt University and Dysautonomia International. The more we can help the world understand us, the better!

We again send huge THANKS to the 450 POTS patients who donated their data and made these findings possible. You can find all 25+ findings here, or learn more about us here.

Our best,

Jill & Mike Brook