Our mission is to make life better for people living with MCAS (mast cell activation syndrome) and related conditions.

Since 2014 we’ve been providing data science support and technology to accelerate research and publication by top experts who often lack large institutional resources or funding.

Here are some publications and projects we’ve been involved with:

 

SIBO Common in MCAS

Weinstock et al. (2020)

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Tinnitus Common in MCAS

Weinstock et al. (2021)

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DoodleThru.com

A website for patients that need a laugh or presenters that need colorful images about POTS, MCAS, EDS, or chronic illness

Read more
 

WhatTheBleep CanIEat.com

A website for people juggling multiple dietary restrictions or seeking to figure out food triggers

Read more
 

TriadLibrary.org

A physician-led project to help raise awareness of 'The Triad' of 3 invisible interconnected syndromes on the rise: Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), and Hypermobility Spectrum Disorders (HSD)

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About Us

Jill and Mike Brook

Jill and Mike Brook both studied advanced statistics at Princeton University, where they met, became rollerblade buddies and graduated with honors before getting married. Jill went on to further study research methodology and data analytics at UCLA and then worked as a statistician and nutrition researcher while searching for relief from her yet-unrecognized MCAS and related medical conditions. Mike excelled at a career combining software development with data science, working for large companies.

Confronted with the challenges of a 17-year diagnostic delay and the scarcity of medical awareness around MCAS, Jill and Mike committed themselves to improving the landscape for future patients. They found purpose and community among MCAS patients, physicians, and researchers striving to advance understanding and support in a field lacking broad-scale institutional backing.

They quickly learned their skills were in high demand. Jill currently devotes full-time to this work, in addition to volunteering as host of The POTScast and Research Liason/Board member to non-profit Standing Up to POTS. Mike works full time as Data Scientist for the Alaska Native Tribal Health Consortium, and he also spends a great deal of time working on projects for the MCAS community and volunteers as editor of The POTScast. The Brooks live in northern California with their dogs Toby, Carrot, and Thumper, where they like to hike and XC ski, usually discussing their next plan to foster better outcomes for those affected by MCAS.

Do you need data assistance on your project?

Each project is unique, but typically we can provide some combination of the following:

To learn more, please email Jill some information about your project at [email protected].